Sunday, September 27, 2009

A Change of Seasons, A Change in Life with Stross

I couldn't resist vlogging outside on Saturday, and I thought I had some free moments to do just that while Stross was inside doing what we call his "cares." At least six times each day (every four hours), he or, if it's in the middle of the night, we perform his intermittent catherization and attend to his ostomy. He's become fairly independent with this task, and Mark and I have decided to use the four years after high school that many parents think of as "the college years" to help Stross become as independent as possible during his version of college life.

Stross is taking colleges classes each day - either English 100 or Successful Study Strategies - and getting involved in some campus activities. Yet the rest of his day is spent practicing life skills as independently as possible. Things like meal preparation, a bit of cleaning or organizing and his cares.

On Saturday, Stross and I took time to get his bathroom even more organized. Now all the medical supplies he might need are on storage shelves within reach of his wheelchair so he has ready access regardless if Mark or I remember to restock the drawers he can reach from his dressing table.

As you'll see in this vlog, accommodating independence and realizing it are different things. We can get everything within reach and something still can go wrong. And we knew that. That's why we installed a phone by his dressing table and why we encourage him to always have his cell phone charged and ready. Each one of us - Mark, Skye, me - live life on the alert for Stross, which means we all keep our cell phones handy - except for Saturday, when I went to the tree house to vlog on a gorgeous fall afternoon and forgot to take mine with me. Ugh!

On the scale of emergencies, this wasn't a biggie at all. But it did serve as a reminder that our oldest son - a young adult in life years - will always need support within reach.

P.S. - I did remember to give you a tour of the tree house, but it would have made you seasick. I'll do it again sometime. Besides, I need to involve our number one tour guide, Stross.

1 comment:

Kati Potratz said...

Wait... Stross graduated from HS already?! Wow. That means a lot of time has passed, but you look exactly the same, Joy. :)

Independence is kind of a relative term, I guess. You should be a proud mama!